First of all, I want to express gratitude to Dr. Graveline for this site, to the other physicians who have contributed, and to all of you who have supported me over the last four months. To anyone who who is new to the site, I encourage you to spend time with the site and to read the books that have been written by Dr. Graveline and the other physicians. There is such a wealth of information.
I have learned so much about the "downstream" effects of statins. I have learned so much about how traditional "allopathic" physicians are influenced by the pharmaceutical industry. As a practicing physical therapist for nearly forty years, I have nonetheless become more and more wary of "traditional" medicine, and have become more confident about integrative medicine, of open and meaningful dialogue between the humans who are healers. I am better because this group of physicians have bucked the industry to uncover the problems statins are causing.
In my journey through the last four months, I have met with skepticism from the various doctors I have seen. Especially all three doctors in the primary practice we have gone to for six years. they persist in thinking that my lipid numbers are a problem which will only be solved by the use of statins. My cardiologist, while pleased in my lifestyle changes, scoffed at my complaints of neuropathy and told me it wasn't related to the RYR. He was so sure that it was related to "low back issues," that he gave me some samples of Crestor to begin "once the neurologist gave me the correct diagnosis."
I never have gone to the neurologist. I know plenty about neurology, given my own profession.
What I did do was read here and learn from all of you, and from the books.
What I did do was work with my naturopath, a man who has the wisdom and time to listen carefully, and whose goal as a healer is to build health, not fight disease. This paradigm of building health is so critical and is what is missing in the American disease (not health) care system.
Four months after stopping RYR, I am substantially better. Not all better, but, happily, much better. I still have occasional stabs of neuropathic pain...in my toes mostly, but occasionally anywhere: legs, arms, hands, trunk. My fatigue levels are substantially better, too. My activity tolerance has improved to a functional level.
What did I do? After all the reading, after the good advice from some of you, and after sharing Golumb's article and Dr. Graveline's book with my Naturopath, I embarked on a regimen of taking supplements that were roughly the "mitochondrial cocktail" that is discussed here. My naturopath also had me taking naturopathic doses of natural thyroid and adrenal cortex for a time, as well as supplements for my GI system. By the end of October, I was better, so the naturopath cut the high doses in half. About ten days later, my neuropathy was worsening, so I went to the full dose and the pain subsided. A couple of weeks later, having become an "expert" at taking fistfulls of supleements, I swallowd a handful with not enough water, just before eating oats for breakfast. The whole mess stuck in my esophagus and I got a burn from the vitamins as they dissolved in place before finally going down. Ouch!
So the next chapter in my story was one of GI issues. The gastro doc put me on Prevacid, a soft diet and the schedule for an ultrasound and an endoscopy, which I finally had yesterday, several weeks into this issue. He asked me to try and refrain from the supplements. Which I did, given that the GI pain was initially intense (I also ended up in the ER with such intense chest pain which was ruled out as an MI, and agreed upon as esophageal in origin). Whatever had ulcerated, had healed, and I have a hiatal hernia.
The good news is that, no longer on the supplements, my neuropathy is minimal!
So, stay tuned...hope you all have a happy time over these holidays.
Thank you for all your help!
Nancy