by madmccuenof3 » Sat Oct 22, 2005 11:10 am
I am 44 female, 5 ft. 90 lbs. and for more than 12 years have taken cholesterol medication. It started with cholestermine (I think that is how you spell it) and the last was Vytorin. I was diagnosed with high cholesterol in my 20's and both my parents died from heart disease. My mother was 42 and died of her first heart attack, my father was in his 60's and died after approximately 10 heart attacks and 3 major strokes. As you can tell I am not overweight. I eat quite healthy and up until approimately 8 years ago I was very active. I had to change physicians due to our insurance. I had to go to the doctor because I hurt my back. The doctor said I had bulging disks and I dealt with it. On the next visit he wanted to blood work and get a complete history. When the blood work came back he said my cholesterol was very high and wanted to change my medication. I was put on a statin. I can't remember which one was first but I have taken all of them including Baycol before it was taken off the market. After starting the statins I soon developed muscle pain and weakness, fatique, joint paint, swelling of the joints, difficulty recovering from minor sinus infections. I approached the doctor and he said I had Fybromyalgia. I started to spiral downward rapidly, I was in his office for something 1 or 2 times a month. I had suffered migraines since my teens and they were constant during my last 2 pregancies and then they came back again, constant. He started dosing me with all kinds of things. I was on so many medicines that the pharmacy was worried. I had the worst problems with my stomach and bowels. The medicine list grew as the side effects increased. I started to have seizures at some point, memory loss, not able to concentrate as well, had to have all my teeth removed as they broke off in my sleep. My eye sight diminished. A heart attack, 3 TIA's, colo rectal surgery, gallbladder surgery, complete hysterctomy, broken ankle and foot from taking one step. My pottasium started to drop out of nowhere and would take hospitilization of up to a week to get it back to normal. Chest pains, leg pains, muscle cramps increased. About a year ago I found another dr. and he helped me get rid of most of the medicine but most of the problems continued but so did the taking of statins. At this point the new dr. put me on Vytorin. To get to present, a few months ago he increased it to 10/80, I had been on 10/20 in beginning. A few weeks went by and I don't know what happened from memory but do know what I was told and here it is. My family said on that Saturday I was sleeping a lot, then when I woke I was irritable, not rational, calling people on the phone and crying and cursing. I called the police was not myself at all. My husband took our kids and left. He had no one to watch them and he did not know what was wrong. The next day they say I went to one of the schools and wanted to pick up the kids and they would not let me. They called the police and I was so mistreated. At some point I can remember the police man had me in the car, with handcuffs tight around my tiny wrists and I had severe chest pain, headache and nausea. I was crying and I felt sick so I told him he pulled over I got sick. Next thing I remember is him slamming me to the ground, then a voice telling him to stop. It was resuce and the rescue worker knew me and knew very well my condition. The took me to a hospital but the police or someone demanded a psychiatric evaluation, well I passed with flying colors and the dr. said you need to call your dr. tomorrow and talk to him about the Vytorin. Well needless to say I could have lost my family. Also, needless to say I stopped the Vytorin (even though I have not told the dr.) I am so very afraid. I went to the dr. a few weeks ago and my cholesterol is now 343 Total, 266 LDL, 154 Triglycerides. About 3 months before I stopped the Vytorin my overall was 307. In the past 8 years I had to stop working, can't drive, for several years I could hardly even take care of myself. We have suffered major financial losses not to mention the years with my children and husband I can't get back. I just don't know where to turn. I am starting to feel better, less muscle pain, more mental clarity, eye sight improved, still very fatigued so I have to pace myself. Chest pain continues so I rest during that and sometimes use the nitroglycerin. Any suggestions you have would be appreciated. I want my life back, I want to play with my kids enjoy my husband, work, cook, clean and just LIVE, not exist. Thank you for your time and thank you for taking such a stand against the dreaded pharmaceutical companies.
Carla in Virginia