ALS...

[eml256]

wondering where your ALS specialist happens to be. I corresponded briefly with a woman who was initially given a diagnosis of ALS by several neurologists for her symptoms. she was convinced they were due to lipitor therapy-so she continued to search for a neurologist who would listen to her. she found one at the Massachusetts General Hospital. after an EMG diagnostic test, this physician pronounced her condition "statin toxicity"--(following from the Mass general hosp site--hope it is helpful. perhaps you could call him......)
Thomas Joseph Kwiatkowski, MD, PHD

Service: Neurology Service
Office: Address: Neurology Associates, 15 Parkman Street, WAC 835, Boston, MA 02114-3117
Phone: 617-724-3914
Accepting New Patients: Yes
Board Certification: Neurology (Expires: 12/31/2013)
Medical Education: Baylor College of Medicine, MD
Languages: No Data Available
Provider Type: Specialist
Clinical Interests: ALS, Neuromuscular Disorders
Insurances Accepted: Aetna Health Inc.
Blue Cross Blue Shield - Blue Care 65
Blue Cross Blue Shield - Indemnity
Blue Cross Blue Shield - Managed Care
Blue Cross Blue Shield - Partners Plus
Cigna (PAL #'s)
Cigna/Healthsource NH
Harvard Pilgrim Health Plan
Humana/Choice Care PPO
Medicaid
Medicare
Neighborhood Health Plan
Network Health
OSW - New Hampshire
OSW - Rhode Island
Railroad Medicare
Tufts Health Plan
Tufts Medicare Advantage PPO
United Healthcare (non-HMO)

[carbuffmom]

My specialist is at Henry Ford Hospital in Detroit, MI. Thanks for the info. If I don't get anywhere at Henry Ford, I will look into Boston.
DEB