Cat Mom2:
A lot of people do not come here ever day and some do not get on until the week end. If everyone sends it out in emails and just leave it here, it will grow and grow and grow. It will not happen overnight. The way I work takes me away without any internet for 28 days at a time, it was just LUCK that I was home when this came up. I would have been upset if I had missed it too!
Also may I suggest to post it anywhere we can on the internet.
xrn:
Hello, Cat Mom2. Thank you very much for adding your signature. It is most welcome and a first... in that it is from Oz and your age is a stunning indictment of statins. It is seeing the personal stories such as those already provided by the signatories, that will ultimately have the most impact. Just looking at the comments already left, one can see a pattern of devastation that would be more than fair warning, to any clinician who possessed a smattering of intelligence.
Unfortunately, the clinicians will not accept these few anecdotal accounts as sufficient evidence for action. The champions of statin therapy will say that all of the personal accounts about statins were wrong to ascribe the horrible lifestyle changes delineated (that we are seeing written down) to the taking of statins. The wilfully ignorant clinicians are never going to see what is front of their faces. It is my hope that this collection of personal accounts does grow into a huge work that demonstrates clear trends and patterns, that will be easily seen by the analytical thinkers of the medical profession.
Before one presents a case one must have a case to present. Seeing the amount of effort that goes into the discussions on this forum part of the spacedoc site, I can see that there are more than enough people with important stories to tell. I just want to deflect a small amount of the energy that is put into discussing various symptoms, effects and treatments, into signing up to the petition and providing a short 500 word account of their experiences, if they feel able to do so.
As I look at the petition document now, it is a miniscule version of what I hope it will become. The clarity of the personal accounts, when taking them all together, is astonishing and any clinician who would dismiss the 17 personal accounts that exist on the petition site at the moment, would be a fool. I think that you have made a good point about time cycles that people use when viewing things on the internet and the issue about where else the links to the petition appear, is a challenge that I am starting to deal with in some small ways now.
I have written to several people that host sites that are anti-statin, the clinicians from THINCS and some journalists.... and that is just a beginning. You will see a reply from the spacedoc admin to some suggestions (a few posts before this one) about placing the post in all forums regardless of subject matter. I would have hoped that this single thread could be 'stickied' at the top of the statins forum but I think that I have to show some sort of value (to other people) before I can expect that.
The admin have kindly agreed that there is some value to the -ePetition threads and have posted links on the front page to the two threads that have petition information and, for now, I cannot really ask for more (18 signatures from 737 views is not a sea-change in demand, being only 2.44% of the viewers of this thread) given the apparently low amount of interest in signing up to the petition.
On other fronts, I have received a direct communication from THINCS and I have replied to that. They may well be able to point me to other places to put links to the petition. For now... a dialogue is ongoing. I am still having dialogue with two separate sections within the UK Department of Health. The results of that ongoing discussion appear in the thread "making sense out of nonsense", when I get updates, but civil service personnel take their time in replying to me and I have no choices about how I must deal with the issues that are still live at that point.
If the petition, which you have signed, was linked to all useful sites, it would grow more rapidly. I believe that THINCS would be in a good position to help me to get the petition publicised. Of course that does not mean that visitors to this site should not tell other people or journalists. I would hope for more assistance from people here too. Yesterday, I had written another eight letters to various people, who have an interest in statin prescription excesses. These are just the seeds. Some of the petition signatories have e-mailed the link to their friends and this can only be beneficial.
I am very disappointed with the level of uptake from this site but the petition is up and running, I am having an ongoing dialogue with UK government departments, I have been solicited for my views about where I think the petion is going and what I hope to achieve by it... from the THINCS membership, I have written to many interested parties... I don't consider that is too bad an effort for the last 48 hours...
Kind regards,
xrn