by Nancy W » Wed Nov 17, 2010 9:25 am
pattyann,
I was just reading unanswered posts and came upon yours. I think many of us have done just what you have done. In my reading on this site over the last year or so, I tried to figure it all out, too. Some of the "regulars" have written about what they take, but I have not found a comprehensive list from Dr. Graveline, nor anyone else.
Recently Dr. Graveline published his newest book as an e-book. It is called The Dark Side of Statins. I got it through Kindle. It takes his research a step further and gets into the biochemistry of the damage done to the mitochondria. He does talk a bit more about the supplements and you might find it helpful. I really appreciated this small book. It was packed with information.
But, for me, the bottom line has been to work with a naturopath and to fine tune which of the supplements are most helpful, in which doses. I was, a year ago, taking fistfulls of vitamins. Initially, it seemed the only relief I could get was high doses of most of what was on that list. In time, my symptoms improved and the naturopath halved the doses. My pain returned shortly thereafter. We upped the doses again, then, in time, slowly tapered as my symptoms continued to decrease. Six months into my "statin (mis)adventure," I revisited the naturopath. At that point, we settled on fewer supplements, and I found one supplement from Thorne called Neurochondria, which had a combination of some of the things Dr. Graveline had talked about. This, along with fish oil and vitamin D3, seems to be the minimum number of supplements that hold my neuropathic pain at bay. We have played with the dose, up and down, for months.
It is a relief not to have to swallow so many supplements, and it is more affordable, too.
At this point, 16 months after all this began, I have figured out the minimum dose I need to take. If I skip two doses (AM/PM) some of the neuropathy creeps back in my toes, in my face, in my hands. A couple of weeks ago, I ran out of the Neurochondria and couldn't get back to the naturopath for like four days. by then the neuropathy was more widespread and the pain was bad. Once I began taking the Neurochondria again, it took four days more for the pain to go. It became very clear to me that, at this point, for me, I definitely need what is in that supplement!
I still get fatigue, and coming back from that has taken months to get to the point where I am now. One gauge has been the lawn mower. When I began mowing last spring, I would think I was going to fall over dead when I had the lawn half mowed. I would stop and start, so very fatigued. Now I mow the lawn completely in half the time. I still get tired, especially if the grass is high and damp, but nothing like last spring. My next guage will be snow shoveling, hehe. Also, I was doing deep water aerobics at the time of the statin insult, five days a week, maintaining an aerobic pace for 60 straight minutes. My exercise tolerance fell to less than ten minutes, not at an aerobic pace, within a few weeks after the initial neuropathy. The fatigue was tremendous! I had to stop for months, but have gradually returned to the class. At first, in September, I could only do 30 minutes, then get out. Now I can stay in there for 60 minutes. I have yet to be able to work at an aerobic pace, except for the occasional "sprint."
I would guess that Dr. Graveline walks a fine line in his books between recommending and prescribing. Everyone of us is different, so it is difficult to say what works...and what doesn't. Hope you have found some helpful supplements for you!
Nancy