Right now I can't walk.

[pmgamer18]

Nancy,

I have friend that knows Dr. Brownstein and talks to him off and on I asked him the next time he talks to Dr. Brownstein to ask about this Statin Drugs working for a long time after stopping them. When I hear back from him I will post it here.
Phil

[Nancy W]

Thanks, Phil, that would be great! If we could get some solid evidence of that, it is worth it's own topic on the board, as if this is true, people need to see that info right from the start. It would sure make understanding why new adverse effects show up later easier. All I can think is that the damage must be done on such a basic level that the degradation it causes begins to effect other systems as well. But if there remains some statin drug in the system longer than thought, this would explain further degradation...so, yes, please! Let me know!

[pmgamer18]

OK as soon as I hear back from my friend. I will post the info here and start a new thread.
Phil

[vicki]

My naturalist just recommended using Charcoal capsules to get the toxins out of me. Statins are toxic. Ask you naturalist doctor. I've been tested for toxins My body is still inflammed after 15 years.

[pmgamer18]

I am now back in the weight room exercising again.

That poor man on the floor in the link at the bottom of this post. Looks like me when I hit bottom last Sept. I could not get up off the chair. For the last 4 weeks after reading Dr. Graveline's new book "The Statin Damage Crisis". and going on the supplements he talks about in his book.


I am now able to walk in a Therapy at the club for older people everyday for an hour. Yesterday I went to the weight room and worked out on there exercise machines there weight room is like being at Life Time's Gym. I had to cut my load way down and I only did 10 reps on each machine.


This morning I am a little stiff and sore but it's from doing the exercising not the Statin Drug damage pain. So now here I am 7 months later still in a lot of pain with I stand or walk and still need a walking but things are looking up.



http://healthimpactnews.com/2011/statin ... le-damage/

[damaged]

pmgamer18...thanks for posting that link to the video!!
I was just wondering, the other day, if others were as bad as I am.
That looks just like my legs.
I'm in my 50s and 10 years ago my legs were solid muscle and I was building houses.
Now, my muscles are mush. That's exactly how I look trying to get up from the floor.

Please post in a few months and let us know how you're doing with the vitamins.

thanks again,
mike

[pmgamer18]

Mike,

I will keep this thread updated on how I am doing. Today I am going back to the weight room can't call this much of a workout. A yr. ago before this Statin Damage I was using a heavy load on the weight machines now some of the women in there 70's are lifting more then I can. I am still in a lot of pain when I stand up and walk with my walker.

But going to the Therapy and walking everyday in the hot water is helping a lot. Also the supplements I am on from the Dr.'s bood are helping a lot.

[damaged]

Thanks.

I tried therapy on three different occasions. Each time it made things worse.
I certainly hope that it works out for you.

A few weeks ago, I tried my wife's elliptical treadmill. low impact. very gentle method of exercize.
While I was on it, it felt very good to be using my leg muscles.
I lasted about three minutes before my muscles were exhausted.

I paid dearly for two days afterward. The pain level increased fourfold.

As to the pain......
I've been experiencing an additional type of pain as of late (last year or so).
And I'm wondering if there's commonly pain associated with muscle atrophy. Or just from lack of use.

I'd like to know if those that have lost the use of their legs (for whatever reason), yet still have sensation in them, experience pain from lack of use.

But I'm not sure where to find that info.
Maybe someone here can help.

The pain is quite different than that of overworked muscles (that still occurs after exertion). And it's relentless. Even when at rest.

Thanks for taking the time,
mike

[pmgamer18]

Mike,

Sorry I missed your post I am a mod at Yhaoo for Men's Health and Low Testosterone and this keeps me very busy most of the day. When someone posts a reply here I should have gotten an Email.

Here is a YouTube video showing how Statin Drugs damage your muscles.

It was just posted today at *Stopped_Our_Statins@yahoogroups.com

You need to watch this and go very slow my Dr.'s keep pushing me to exercise more I am going to show them this video.
http://www.youtube.com/watch?v=MN7BoE8OmW4
Phil

[damaged]

Thanks.

When I google "stopped our statins" I get links to a Yahoo group, a Google group, and a standard HTML page.

Can you advise as to which would be the best avenue? By that, I mean the one with the most recent info, most users, etc.

thanks again,
mike

[pmgamer18]

Here is a link to there forum.
http://health.groups.yahoo.com/group/Stopped_Our_Statins/join?yguid=154836543&finish=sub

[damaged]

heh heh...I was afraid that you'd say that it was the yahoo group.
It just keeps taking me in an endless "sign in" loop.
Probably some scripting issue. As a result, it won't send a confirmation email.
I've had this problem with one or two forums in the past, but I'm not wild about enabling activeX globally (knowing the inherent dangers) in order to read a board.
But, thanks anyway.

mike

[pmgamer18]

Sorry your having this problem I do know once you join up you need to give the mods time to approve you we get a lot of spam and I like yahoo for this it keeps the spam out.

If you have a lot of cookies some sites will not load up.
Phil

[pmgamer18]

Just an update I now have a bad bladder and Kidney infection for the first 6 days my Dr. gave me Cipro. I started having more pain and did a search about Cipro and the first thing I read was this.
==============================
WARNING

Fluoroquinolones, including CIPRO®, are associated with an increased risk of tendinitis and tendon rupture in all ages. This risk is further increased in older patients usually over 60 years of age, in patients taking corticosteroid drugs, and in patients with kidney, heart or lung transplants (see WARNINGS).

Fluoroquinolones, including CIPRO, may exacerbate muscle weakness in persons with myasthenia gravis. Avoid CIPRO in patients with known history of myasthenia gravis
-----------------------------------------------------
I then called my Dr. and he switched me to Amoxicillin I have been on it 2x's per day 5 days now. I am not seeing much inprovment and I feel it's the pain pills slowing down my voiding.

I can't help but think I could be having kidney damage from the Statin Drug damage my labs are still high for the following.
Myoglobin, Serum High 123 range 50 or less mcg/L. and after reading the link att. in this post high Myoglobin can cause kidney damage but I am not sure if my levels are all that high to do this just worry about it.

Creating Kinase Isoenzymes w/o total.
CK-MM 91 low range 97 – 100 % of Total.
CK-MB 2 range 0 – 3 % of Total.
CK-BB 0 range 0 % of Total.

Creatine Kinase, Total 284 high range 44 – 196 U/L.

I do need iron pills and now for the last 4 labs of every 8 weeks my Ferritin is going why up. I am told this is due the the inflammation from Statin Drugs. Still I stopped taking my Iron pills my labs for Iron are up.

Iron and Total Iron Binding Capacity.
Iron, Total 128 range 45 – 170 mcg/dL.
Iron, Binding Capacity 291 range 250 – 425 mcg/dL.
% Saturation 44 range 20 – 50 % (calc).
Ferritin 382 range 20 – 380 ng/mL.
Vitamin B12 957 range 200 – 1100 pg/mL.
Folate, Serum > 24.0 ng/mL.

Do any of you know if I might have a problem with my kidney damage from Statin Drugs as talked about in this link from my labs.

Dr.'s keep pushing me to exercise or I am going to have heart problems. I feel one set back after the other exercising even walking in a pool of water.

Now I can't do any thing with this added pain in my back from this bladder and kidney infection.

http://people.csail.mit.edu/seneff/stat ... ilure.html

Thanks Phil

[Nancy W]

Hey Phil, I can't answer about your kidneys...not my area of expertise. But what I will comment on is your exercise question. From going back through your posts, I can see that you were on statins a couple of years. Then you came off in 2010. Am I right? I don't really have a clinical answer, even as a physical therapist, but as a statin-damaged person, here are my thoughts.

I am now over two years since I quit. I began with CoQ10 and a raft of supplements, per my naturopath two years ago right now. In about 6 weeks, the neuropathy was noticeably better, but the terrible fatigue went on . At a year out, I still was thinking I would die when I tried to mow our back yard. Over the first year, I tried to go back to the pool, where I had been swimming or exercising at an aerobic pace for and hour, five days per week prior to the statins (which I took only for one month before encountering the problem). I could not, nor have not been able to get back to exercising at an aerobic pace. I can, however get in and move for the whole hour without any detriment. I can mow the yard now and not feel as if I am dying. That is the biggest improvement.

Within year two, I realized that not only was fatigue a problem, but I was, and am having problems with tendinosis...at times, it feels, with little provocation, like my tendons are ripping off their bony insertions. This has, as I enter year three, improved a bit, but hard not disappeared.

My primary presenting symptom, this time around, due to the RYR, (I had one earlier go round with Lipitor and muscle pain and early rhabdo) was peripheral neuropathy from head to toes and fingers. While it is much better, it is still present on a daily basis, even if I take the supplements I am on, in my toes or my left trigeminal nerve (face) to some degree. If I stop the supplement called Neurochondria (CoQ10, Vits B, Acetyl L-Carnitine by Thorne) I have complete global peripheral neuropathy in 96 hours). I found that out when I ran out in Africa last May. All of the neuropathy returns. Now, if I skip a dose, I notice within hours and increase in neuropathy.

So I am left to conclude that the actual "damage" is still there in some way or another. Is it mitochondrial damage? Don't know.

Last year, a colleague went to a conference...she heard a Dr. Brownstein (I think his name was) talk. He said something to the effect that statins remained in the body for 10 years. She called me up on the next break and told me that. Now, I found this guy's website and wrote to him, but he never wrote back. I bought his book, and it does not say that anywhere. I have not been able to find the research so far that would say that.

But, I do go to a very intuitive naturopath, who was working on me the other day, using craniosacral therapy, which we both practice. She was drawn deep into my brain and suddenly said, deep in your brain you still have statin toxins. You need to flush them out. She has suggested I try things like ginkgo, ginger, or even wasabi (Japanese horseradish) to increase the blood flow to the brain. I haven't started yet...

All this to say...I am convinced, as I know others are, that the effects can linger...who knows how long...in certain individuals.

What my naturopath did was increase the Neurochondria, for the second time this summer, in an effort to see if the constant neuropathy in my toes (different toes, different days) could be helped...we will see!

So from my point of view, time has helped, as have refining the supplements. But I am skeptical about whether this will ever "go away" completely...

[pmgamer18]

Hi Nancy,

Great to hear you can now cut grass I feel so dam guilty when my poor wife needs to do things I can't do any more. I am lucky to have a close family and wonderful Grandkids. The are over here everyday we watch them mom and dad both work.

The help out and cut the grass thing GOD.

I know Dr. Brownstein his office is about 10 miles from my home and you can't get into see him he is booked up.

I know one of his patients that worked with me at a Thyroid Forum she had breast cancer and was dying. He cured her with Iodine today she is a naturopath and works with him to help with his books.

I sent her an Email a long time ago and asked her to find out if Dr. Brownstein said that Statin Drugs stay in the body for a long time. And I asked a friend that knows some one that works for the Dr.

My friend never could find out and I forgot about the women that he curded of cancer. I will try again and see if she can ask him.
http://iodine4health.com/overviews/audi ... visual.htm

Still I think it's true I am better now when we go out to eat I don't take my walker I can walk for a short time but I still pay for it that night and the next day.

I am on Vicodin/Lortab/Acetaminophen/Hydrocodone 500mg/5mg PO Tab 3x’s/day. It's been about a yr. now I can't get off them the pain is to much. Yet taking this drug it slows down my voiding and I ended up with a bladder infection that I did not know I had due to the pain meds could not feel it. I figured out I had this when it went into my Kidneys.

I am now on my 5th kind of Anti's to ride my self of this infection. The one that works is bad on your joints and muscles Cipro so now my Kidneys are better and I just took my last pill. So I hope this is fixed I don't need the extra pain.

I can't do much with this infection I had to stop going for walks in the pool need to get rid of the infection first.

I only have one added place of pain it is my shoulder on my left arm I can't even life it up with out pain.

I am on every kind of supplement that the spacedoc talks about and I feel they all help we have cut back on my Ubiquinol Capliques Featuring Kaneka's Qh from 400 mgs 3x's /day to 300 mgs 3x's/day and next week I am to cut back to 200 mgs 3x's/ day don't know what this is going to do or if it's a good idea.

Because I am a mod on the forums for Man's Health I know some great Dr.'s that have come to my forum from time to time and I get a lot of help from them.

I know there is not much out there about fixing Statin Drug damage and even going to see a specialist like a Dr. for joint and muscle pain.

What a waste of my time and money the 3rd one I see we talk for about a min. and I got up and walked out. They think this problem is not due to Statin Drugs and think because I had Heart Bypass Surgery I should have not stopped them.

It's been a yr. now that I hit bottom with this problem and stopped Statin Drugs I am better but it is so dam slow it's like if I did not keep a log on how I am doing day to day I would not see it.

I bring it out every time my wife says your not getting any better.

I guess all I can do is keep on with what I am doing but the pain pills I need to try a diff. one of get off them.

I don't have a prostate problem but the meds effect me in a way that slows down my voiding. I did try 4 diff. kinds of pain meds before going on Vicodin and this one is the only one that worked.

One of the first pain meds I tired was what the spacedoc takes Ultram/Tramadol 50 mgs 2 pills 3 x's / day this did not slow down my voiding but did not help much with my pain.

I think I am going to try this again it might work now that I have less pain. The thing about the pain is if I don't do much I don't have it. Talk about being between a rock and a hard place.
Phil

[luckyone]

I used Statin drugs in prior years with negative side effects after about three months usage. Negative side effects were stomach problems. This past year, my doctor wanted me to try Crestor. After a couple months usage, I had severe cramps in feet, leg, and back. I quit couple weeks ago, and cramps are becoming less severe and less often. These cramps happened mainly at night. I think too many people stay with these statins and wind up with permanent damage! Another drug that doctors really don't know what they are prescribing!!

[pmgamer18]

Hi Nancy,

I seen my Heart Dr. today going over tests all is great I talked to him about what Dr. Brownstein said about how Statin Drugs can say in your body doing damage for up to 10 yrs.

My Heart Dr. know Dr. Brownstein and said it's true Statin Drugs can stay in your body doing damage for about 10 yrs but he did say it's rare and people with this problem don't get better.

So he feels I don't have this part of the problem because I am getting better. Labs even show it.

Phil

[pmgamer18]

Hi All,

It's been 39 months since I had heart bypass surgery and after this I was put on Statin Drugs. Yet I never had high Chol. levels in my life. I did not want to go on them but the Heart Surgeon went behind my back and told my wife and kids I would not live out the yr. if I did not go on Statin Drugs.

I was on them 2 yrs in pain from day one when I had this surgery I got a bad infection in my sternum and needed to be opened up 5 x's each time I was on a blood thinner and needed to be left open until they meds were out of my body so they could close me up again. So going through all this I was put in a coma for 14 weeks very long story.

Each time I seen my Family or Heart Dr. I told them the Statin Drugs were crippling me and I can't stand the pain. Each Dr. felt it was my muscle loss due to being in the coma.

And told me to keep on the Statin Drugs and keep getting exercise I kept doing this until I could not stand up or walk anymore.

Now they listened to me and took me off Statin Drugs. My pain was so bad they put me on pain meds.

And little by little I started having problems with them meds and they kept changing them.

I am Hypopituitary My brain dose not tell my body to make Hormones and I give my self Testosterone shots doing this makes my body make a lot of Estraidol.

And I am on meds to keep this down high Estraidol levels in men will make them dam sick for me it's Flashing and Panic Attacks. Over time on pain meds my meds for keeping my Estraidol levels down were not working. So for the last 9 months I have been suffering with flashing and panic attacks day in and day out.

Until I figured out it was the pain meds stopping the Estradiol meds Arimidex and then Aromasin from working.

I don't know if any of you ever had a Panic Attack but I was ready to eat a bullet over this until I figured this out.

Now I am off pain meds and my Estraidol meds are starting to work.

Here is my problem off the pain meds I find I am not any better my Statin Drug damage is not better.

And off them pain meds I can't do much and now it's not just my lower back, hips and upper legs that are hurting me. My shoulders now hurt and I feel this is more damage due to my Dr.'s pushing me to do some exercise sitting down.

They pushed me to try to walk a lot with my walker until I could not do this any more I would end up with a lot of pain doing this.

So here I sit now I can't do much I don't get out much I pay for it in pain when I do.

Yet my Dr.'s keep telling me I need to keep moving or my heart and body will give out.

I sit here and worry about this then I think what are they talking about people that are older all they do is sit day in a day out with out getting much exercise and live a long time.

I just don't know what to do about this and I find my self fighting off feelings of Depression. And the input I get from my Dr.'s telling my family I need to keep moving that makes me feel this way.

The other day my kids and grand kids were over and they were talking about a winter party all the family members were going to this Sat.

And my Daughter asked me if I was going and I told her no I can't go there is no room for me with a walker in this house and no were I can sit with my feet up.

My wife jumped in and said he just does not want to do anything but sit on his A** and his Dr. said he needs to get out and do things.

So now my dam Dr. and my wife have my family thinking I don't want to do anything. Even when I tell them I can't.

I can't tell you how sick I am off all this. And I don't know if it's true not being able to do things is going to take away from like life or not. I do what I can up to a point that it will not set me back and put me on pain.

I am lucky I don't have pain sitting or laying down yet now my shoulders ache most of the day but not bad pain.

I guess I just needed to vent today it's not easy living like this.

[Allen1]

Hi there Phil,

I am truly shocked that you had to go through all that. The extra complications that Statins caused should have been at least suspected by the doctors who prescribed them, there have been a lot of reports about Statin side effects and how they interfere with the bodies ability to manufacture things such as Q10 and much more. The doctor should have been aware of this especially since you had all of those problems since the operation and starting statins.

As far as the exercising goes, it can cause so many more problems and injuries as far too many of us have found out the hard way. Only do what you are comfortable doing and try not to overdo it, we have all tried to be strong and put on a brave face while attempting to do what we were able to do before. Unfortunately all that bravado will only make our problems that much worse.

A little bit of moving around will suffice, if you feel up to it at a later date then add to it a little, until then, let your body tell you when its ready for more activity.

Please tell your doctor and wife, the problems are real, they also become worse when exercising, its called exercise intolerance and so many of us that have been affected by statins know how it knocks us for six when we attempt to tax ourselves.

In all honesty, your doctor should really know about such things. Never mind about physical exercise, I also know that even a short time spent with family members is draining nowadays and that includes the very people you love the most.

Take care Phil, I hope your wife gets wise to the reality of the situation and gets off your case, heaven only knows, you have been through enough already.

All the best,
Allen.