After looking at several sites on Mitochondrial disorders I am extremely confused now..!! How can a person get a diagnosis on mitochondrial disorders if they dont know the type to look for? DOES anyone know where ( city) in Canada do they diagnose this disease? And how do they know what type? I spoke to an internal medicine specialist and he said that before he can even refer me to anyone and( he hasnt a clue as to who to refer me to anyway ) he said that he needs all of my medical records..What does he mean? he didnt elaborate as he just assumed that I knew..Does he mean all the medical records since the mitochondrail disorders began or does he mean lifetime medical records?
I am really confused!
can someone out there tell me what medical records he needs? I dont think that we have anyone in this province that have any knowledge of this mitochondrial but I am prepared to travel to get help. This looks like a 15 year excursion in ever finding the answer.:(
I have not been well at all lately..I have extreme sore body all pain alot of the time.. I have been tiring after noons ( unusual for me) and have to go to bed and nap now..I feel nauseated, lifeless and no energy
Gosh I miss Duanne! he would have the answers .. Does anyone have any idea as to whats going on now with me? Could cholesterol be up again?
I welcome any answers..I wished there was a doctor here on this site to answer quesitons.. Did we ever give spacedoc a good bye and thank him for the priceless research that he has given to us. Remarkable man!
How can I locate him to send him a great heavy heart good bye to the retiring from the site?
I miss him..
If anyone canadian can offer any help please its all welcomed. I dont have the energy nor time to read all the peoples remarks and stories here..I need true facts and these people arent doctors